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HADLEY HOPE |
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Related Links/Updates
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If you are interested in learning more about Niemann-Pick Type C disease, other families struggling with this disease, research, and/or clinical trials, please look at the below web sites. |
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12 Month Trial Results on Miglustat
Miglustat in Niemann-Pick Type C (NPC) Disease: a 1 Year Interim Analysis By M.C. Patterson, D. Vecchio, H. Prady, L. Abel, N. Ait Aissa, J.E. Wraith |
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Addi and Cassi Hempel Reno, NV USA Cathryn and Corynne, Frisco, TX USA Gabrielle Laverde, Orange City, FL USA Race for Adam, PA, USA Touchdown for Ty, Las Vegas, NV USA
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National Niemann-Pick Disease Foundation
The National Niemann-Pick Disease Foundation supports and promotes research to find therapies and a cure for all types of Niemann-Pick disease, and we provide support services for individuals and families affected by NPD. |
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Ara Parseghian Medical Research Foundation The Ara Parseghian Medical Research Foundation, a volunteer, nonprofit corporation, funds research projects that will lead to a treatment and cure for Niemann-Pick Type C disease. |
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More Information on NPC |
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Posted: February 5, 2008 An unexpected finding turned out to be a clue leading researchers at Washington University School of Medicine in St. Louis to propose a new treatment approach for Niemann-Pick disease, a rare, deadly neurodegenerative disorder.
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