Special Thanks

HADLEY HOPE

We wish to thank the following individuals, organizations, and businesses who have so graciously and generously given of their prayers, time, talent, goods, and/or services to help our family and others afflicted with NPC.  We are so uplifted by the outpouring of support we have experienced, and hope that you will support those that have supported us.

 

 

 

 

A sincere and heartfelt thanks goes out to the following people who have so willingly given of

their time and treasure to help us on this journey: 

 

All Anonymous Donors & Prayer Warriors - Donna & Scot Austin - Cyndi Ash - Joseph Barcomb & Julie Waters-Barcomb -Travis Beard - Jose & Gina Cepeda - Dan Crocker - Cassie Belmodis - The Bock Family - Father Liam Cary — Becky Cochran - The Cutler Family - Nicole & Alex Delasio - Regina Ferguson & Family - John, Teresa, Julie, Tessa, & Brianna Gallo - Julie Galey - Eileen & Jim Givens - Tom & Sandy Gomes - Leann Goodenberger - Jessica Gordon & Family - Dan Gutman — Sue & Allan Hadley -  The Hansen Family - Pee Wee Harrison - Mike & Ann Hillman — Don & Kathy Hogge - Julie Hoy - The Jantzer Family - The Jones Family  - Jenny King - Monsignor Barry Knestout - Peter & Eileen Kralik — Sonnie Lee - Meadowlark Lemon -    The Millenheft Family — Sister Inez Marie - Margaret Miller - Brian Moyer - Sister Michele Anne Murphy - Eileen O’Connell - Poor Clare Sisters of Perpetual Adoration D.C. - Chuck Robinson - The Savage Family - Allison Scoggins -  Myrna Shaneyfelt - Carrie Smith -  Dean & Nancy Sweeney —  Suzanne Teal — Father Andrew Thomas — Marianne Thompson — 7 year old, Sam Vanommen who felt the Lord was leading him to give a gift - Gerrit & Tracie Vanommen -  St. John Vianney’s School: San Jose, CA - Sue Watillo -  Danielle Wheeler -  The Wheeler Family - Zach Zeek -

 

 

 

 

Birthday Party Donation

 

Teddie Savage & Ellie Hough celebrated their 10th birthday recently, and rather than receiving presents, they chose to generously donate their “present” money to the Hadley Hope Fund instead.  A heartfelt “thank you” to these girls, their parent’s, and classmates that participated.  They raised $580 toward research, medical expenses, and potentially a cure!!

Jean’s Day @ LandAmerica Lawyer’s Title

 

Shelly Berryessa and fellow co-worker’s at LandAmerica joined together to raise funds for NPC on Friday, April, 4, 2008.  Each employee who participated paid $5.00 to wear jeans on that day, and they raised $295!!  Thank you so much to all LandAmerica employees for your generosity and kindness.

RVAR Donation

 

The Rogue Valley Association of Realtors was presented with our situation by Carrie Smith, Principal Broker of Western Properties of Southern Oregon.  (She told me she usually can keep it together, but her tears just flowed, and everyone’s hearts were moved by our children’s condition.)  Even in hard times, people are so willing to give, and we extend our gratitude to the association for their donation of compassion and love, and to Carrie for her beautiful heart of love for our kids.  They donated $1000 to our mission!

5-12-08

4-4-08

3-14-08

Blood Fair for Research

 

Ed & Christy Cutler, owners of Phlebotomy Services International as well as employees donated an entire day to the collection of blood samples from “healthy” young children in our community to assist with research.  These samples are critical in finding biomarkers for the drug, Zavesca currently being used on only half of NPC kids.  It is essential they find these markers so the drug can be approved for NPC, and measure effectiveness of new therapies and other drugs.  Researchers are so indebted to Ed, Christy, Janelle, and ALL of the families and children who so generously gave of their time and blood for us and other NPC children!!  They had over 40 samples sent to Dan Ory’s research lab in St. Louis!!

4-4-08

3-4-08 thru 3-18-08

Easter Hope Challenge

 

Jessica Gordon, a kind and compassionate fellow parishioner from Sacred Heart Catholic Church, felt compelled to help our family after she heard of our children’s recent diagnosis.  On her beautifully designed blog site: 

http://showerofroses/blogspot.com, she challenged others within our tightly knit community to donate to Hadley Hope.  Our sincere appreciation goes out to all those who participated, as well as Jessica who spent time on the beautiful basket donated, as well as collecting money from the Hope Challenge.  You helped raise $3250 which will go towards medical expenses and research and we are in awe over what you have accomplished!!

3-8-08

&

3-9-08

Wine Tasting at the Capitol & Hadley Hope Basketball

 

A special “thank you” goes out to Allison Scoggins, (aunt to our children), for the hundreds of hours she spent on making Wine Tasting at the Capitol, and Hadley Hope Basketball Game a huge success!!  Thank you also to all of the sponsors, participants, and spectators that came out to support our family and other children with NPC.  We are indebted to you for all of your effort, love, and support.  Both events combined raised approximately $30,000!!!  Thank you from the bottom of our hearts!  May God bless all of you.

Hadley Hope Day:  St. John Vianney’s School Donation Drive; San Jose, CA

 

Peyton, Kayla, & Jonah’s cousin’s Julia, Tessa, & Brianna attend St. John Vianney’s, and they along with their mother and father, felt moved to help our family fight this rare disease.  They asked for students to bring donations to school to help support us on May 4, 2008.  We are very overwhelmed by the outpouring of support from a school and student body we don’t even know.  How beautiful God is, and we are truly moved by their hearts that perfectly display a heart of Jesus.  Thank you so much St. John Vianney’s parents, long time family friend & Principal:  Sister Michele Anne, and student body.  We are indebted to you for opening your hearts to us and helping us raise $3550.02!!

5-2-08

Poker Night

 

Brian Moyer organized a couple of fun-filled evenings for the guys to help raise money for the Evening of Hope Event to be held June 14, 2008.  The poker night consisted of a Texas Hold’Em Tournament, and about 20 people attended the first, and 12 the second event.   Both times, the generous winners donated all of their winnings back to Hadley Hope!!  Wow.  Thank you to all who participated and continue to support us.  These events raised close to $1000!!  We are grateful to each and every one of you, and are glad you had some fun at the same time!

3-30-08

1-1-08

thru

12-31-08

Totally Cellular 2008 Pledge

 

The Alexander Family, long time friends and clients of our cellular business have so generously pledged $1 for every cellular accessory sold in their 20 stores across Oregon every month for the entire year of 2008!!  Not only do we appreciate their financial donation, but their ongoing prayer support and emails really lift us up when we feel emotionally exhausted.  Thank you so much for your compassion and kindness you have shown our family.  Their pledge will help defer medical costs and fund research to find a cure.