Hadley Hope - Raising Awareness of Niemann- Pick Type C Disease


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Cyclodextrin Infusion Approval for Peyton to treat Niemann Pick Type C

We just received FDA and IRB approval from Asante in Medford, Oregon for Peyton to receive Hospital / HOME infusions of cyclodextrin!! We will hopefully get his port installed in the next two weeks and begin by the end of the year.

We are very excited to begin treatments, as many studies show benefit in treating NPC, and Cyclodextrin is a completely safe sugar compound!  Thank you to everyone for your support, thoughts, and prayers to help make this happen!


Bryan and Laura




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