Hadley Hope - Raising Awareness of Niemann- Pick Type C Disease
 

 

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Vegas in the Valley is back!
Join us on Saturday, May 17th 2014 at the Rogue Valley Country Club.  The event starts at 5pm and your ticket includes entry to the event, appetizers and hosted beer and wine bar.
Event Tickets and Event Sponsorships are available now.
 



Peyton & Kayla Medical Fund.  This fund was set up to help defray costs associated with treatments for Peyton and Kayla.  Click here to donate.  Please note: This donation is not eligible for a tax deduction.

 






 

(Last Update 1/18/2014)

 

Please help us raise awareness and funds by spreading the word about this deadly disease known as "Childhood Alzheimer's"
 
On November 9th, 2007 we heard the words that no parent should have to hear: Your son has a neuro-degenerative disease.  It is Terminal, and there is no cure.  And, your daughter has it too.
 
Niemann Pick Type C is a devastating disease that affects the brain, liver, spleen, and lungs.  It causes problems with speech, swallowing, balance, and fine motor skills.
 
We were told there was no hope.  But, now new therapies are beginning to emerge, that can help slow the progression of the disease, and possibly lead to a cure!  This was made possible by all of the generous supporters who gave their time, money, and prayers.  We have been so overwhelmed by the support of people all over the world, who are truely making a difference.  Please keep the momentum going, and continue to support the Hadley Hope Fund and find a Cure for Niemann Pick Type C!

Hadley Hope Fund                                                           ..

102 W. Clark St.
Medford, OR 97501

Email: info@hadleyhope.com

Hadley Hope Fund is a Federal 501(c)3 Non-Profit Organization. Tax ID 68-0668891

Dedicated to funding ethical research to accelerate therapies and a cure for Niemann- Pick Type C disease (NPC), better known as Childhood Alzheimers.

             

Family1  Family1



 


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